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Yesterday: Saturday, beautiful day, not too much sun, a little wind, the perfect day for shopping, for the young lupus completely broken that I am. Direction the Four Times Shopping Center in La Defense, in addition there was not a lot of people, it's top shopping without jostling, except perhaps at the H & M swimwear department: 9 € a top and a bottom! But I have not cracked. A few purchases and 2h later, Claudia was no more!!! I exceeded my "daily market quota", the famous 2h. Pain in the feet, calves, thighs, lower back, back, arms, forearm, shoulders, in short nothing escaped. But I wanted to persevere, or rather abuse, and I stayed 1h more: 1h of self torture. Where I really regretted not being back? When leaving the Castorama of the Four Times, the vigils prevented me from going out, because according to them I opened and stole a pack of screwdrivers. Oh my god I wonder how I did to stay calm, because that kind of accusations to the con, I usually get carried aw...

I am a student, I work at night for the town hall of my city, with kids in "school failure". In 2 weeks, Saturday, May 29, we have a party, a kind of carnival, where we are supposed to parade, dance, walk in the streets of the city, from 12h to 19h. Big problem: how am I going to do? How can I keep more than 1 hour to walk? From experience, I know it's useless to talk to my boss, because I work with one of my friends, who was supposed to know since 2002, when I told him about it, that I suffer from an LED. However, she "forgot" it, and when it was about a month ago she asked me what I had in the face (mask of the wolf), and that I replied that it was a lupus, she looked surprised that I did not speak to her before. Thank you for being my friend, it's great (pseudo) yupi friends! So talk to the superior, even if I get along well, so that he understands nothing: no thank you. People in general react to me as my father: According to him, I am in good health bec...

How beautiful and magical these holidays! No problem, no confusion, and a pretty destination! Departure in the evening by car from the Paris region, for an arrival on Toulon early morning, to take the ferry that was to take me to Corsica: Everything went absolutely well, the road is long (+/- 800 KM) but arrived at km 400 problem! problem! The speeds of my car have begun to let go. The 5th is in neutral, the 4th, does not want to engage lol and speeds are "wedged" without being fully engaged. Super hard of them pass, had to do both hands while trying not to break the box! It would have been more than tragic there. I arrive somehow on the boat after having traveled 350kms like that. Leaving the boat it took me 15 minutes to put the 1st and so good!  On Ajaccio, once installed, I call my assistance that sends me a tow truck right away. Super bad guy, who tries to make me believe that it's my clutch that has let go, and there, the bums start! We take my car to Volkswagen, wh...

Back to school after the holidays was not easy! I missed a lot of my blog, and also my facebook page. In fact, I'm pushing, suddenly, I'm sick H24. For 1 month, I did not stop coughing, coughing. Accompanied by fever (once a week, it's accurate lol) and cramps with or without fever. Currently, the cough is almost gone, the fever less rarely (once a month), but the pain is more present than ever. About once a week I am stuck with pain, I can not even move a finger! If I lie down, only I can not get up. If they help me up, I walk like a granny, step by step, back all bent and it's far from glamorous!  And it's a big vicious circle: I lie down to rest, but the more I rest, the more it gets worse. On the contrary, if I try to move, walk, it passes over the hours alone. But you have to have a lot of courage to get up and move while suffering martyrdom. And if no one sees that I am alone, in my room, in the vegetable state that does not move, well I can spend 24 hours wit...

Hello everyone! Today I am going to talk to you about a topic that is very interesting for lupus in general, since about 9 out of 10 people with lupus are women. If I was so far away from my blog, it was not because I was fed up or more time. Simply, many events were chained, and not the happiest, this last year. At the end of 2011, I learned about my pregnancy. Obviously it was wanted, no push in sight. I have just had ultrasounds every 2 weeks up to 22 / 23SA, because my anti SSA body being positive, it can affect the heart of the baby. After 22SA, it's every month until the end. At 24SA, I had a routine ultrasound. I have been told that since the last ultrasound (which had taken place 2 weeks ago) the baby had not grown at all, and that there was no longer a drop of amniotic fluid. They send me home, just saying that it would not move, no improvement to hope for such a small term, and should consider the IMG. But 2 days later, I am taking violent epigastric pains. There I go to ...

The Lupus is a chronic disease in which, for some unexplained reason, the immune system defense cells attack the patient's body. The symptoms vary according to the individual and are multiple: fever, tiredness, pains, disturbances of the vision, nephropathy, swelling of the joints, cutaneous plates with crusts. This week Claudia, a member of the Lupus community, is giving us a hand and telling us about her daily struggle with the disease. She is also the editor of a  blog on Lupus, entitled "Lupus sucks", on which she testifies of her experience.  Here is an interview with me with the Carenity Blog. Good reading! Your daily life with lupus Carenity: Hello! Can you introduce yourself in a few words? Lupus interview: My name is Claudia, I'm 26 years old. In a relationship for 8 years, I am today the happy mother of a 3 months old baby boy. I am currently looking for a job in the field of Communication. Carenity: When have you been diagnosed with lupus? How did it go? L...

Systemic lupus in children and adolescents in ten key points: Editor: Dr. B. Bader-Meunier, Reference Center "Juvenile Arthritis", Necker Hospital, Paris) Editors: Drs Quartier (Reference Center "Arthritis Juveniles", Paris), Dr. Ranchin (Pediatric Nephrology, Lyon) 1 What is Systemic Lupus? How is Lupus treated and supervised in children and adolescents? SLE is an autoimmune disease that can affect one or more organs, especially the skin, joints, blood cells and kidneys. SLE is a chronic disease which means it can last a long time. Autoimmune means that it is a disease of the immune system that will cause an attack on the patient's own organs. Systemic means that it can reach several organs of the body. The word lupus comes from the Latin word wolf because of the characteristic aspect of the cutaneous involvement of the face with a red plaque in the shape of the mask which is called "wolf". The management of pediatric lupus should be coordinated by a ...

Watch your lifestyle: In order to limit the risk of infection, it is very important to have a rigorous hygiene (dental, skin care, prevention of mycosis) In addition, it is necessary to monitor its diet, some products may cause disruption unpleasant. To live in harmony with oneself, one must learn to take care of one's body, to love oneself in some way. In lupus it is common to have a fatigue that can be permanent or intermittent. In the latter case, a job is possible but it is prudent to provide the possibility of rest time. Living with lupus Lupus is a chronic disease that can last for years or even decades. In general, the evolutionary pattern alternates thrusts and periods of remission. At each thrust, some body systems are affected and appropriate treatment can calm the lesions. Once the push is over, the treatment must be reduced gradually: it is the transition from attack treatment to maintenance treatment. Treatment reduction should be cautious to limit the risk of relapse....

Most of them are female, sometimes with a sex ratio of 9 women for 1 men, as in Lupus and Sjogren's Syndrome. Why this feminine predominance? For a long time, the only incirminated factor was female hormones (estrogens) but this explanation was insufficient because estrogens may even have, under certain circumstances, a protective anti-inflammatory role. In recent years, other interesting original explanations have been made. It is likely that the female X chromosome plays a major role because it carries many genes of immunity. The expression and regulation of these genes could be disrupted in major autoimmune diseases such as lupus. Other phenomena such as fetal-maternal microchimerism, which is the exchange of cells (especially lymphocytes) during pregnancy through the placenta, may also play a role. So, systemic autoimmune diseases, such as lupus or localized forms of an organ (such as thyroiditis), preferentially affect women. For example, lupus or Sjögren's syndrome are fe...

The beautiful stories always begin with "Once upon a time...". The history of Lupus does not derogate from this tradition! When I was young intern in medicine, I was immediately fascinated by this so bizarre disease with the enigmatic name. This fascination was transmitted to me by Maxime Seligman, father of the French clinical immunology when I had the chance to work in his service at the St Louis Hospital in 1988. This passion for immunology and this fascination for the Lupus had allowed him thanks to his curiosity and his perseverance and this rigor so important in the medical art. Lupus was already a famous disease, the subject of many fetish researches. On the other hand, the disease was unknown to the general public, but also to most doctors. What progress has been made since then in so many areas! The knowledge of the disease, its care and its recognition in the medical world and the general public! The understanding of lupus has been considerably "sophisticated...